Chronic Illness Resources

Looking for support, advocacy, or reliable information about a specific condition? We've compiled a no-fluff directory of trusted organizations and nonprofits across a wide range of chronic illnesses. Because trying to Google things with brain fog is basically a sport — and not the fun kind.

Addison's Disease
A rare disorder where the adrenal glands don't produce enough hormones, leading to fatigue, low blood pressure, and other symptoms.

Addison’s Disease Self-Help Group
https://www.addisonsdisease.org.uk
National Adrenal Diseases Foundation
https://www.nadf.us

ALS (Amyotrophic Lateral Sclerosis / Lou Gehrig's Disease)
A progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord, leading to muscle weakness and paralysis.

ALS Association
https://www.als.org
ALSA National Office
https://www.alsa.org

Alzheimer’s Disease
A form of dementia that causes memory loss, confusion, and cognitive decline. It typically worsens over time.

Alzheimer's Association
https://www.alz.org
Alzheimers.gov
https://www.alzheimers.gov

Ankylosing Spondylitis
A type of arthritis that primarily affects the spine, causing inflammation, pain, and possible fusion of the vertebrae.

Spondylitis Association of America
https://spondylitis.org
NIAMS – Ankylosing Spondylitis
https://www.niams.nih.gov/health-topics/ankylosing-spondylitis

Asthma
A chronic lung disease that causes wheezing, breathlessness, chest tightness, and coughing due to inflamed airways.

Asthma and Allergy Foundation of America
https://www.aafa.org
American Lung Association – Asthma
https://www.lung.org/lung-health-diseases/lung-disease-lookup/asthma

Autonomic Dysfunction / Dysautonomia
A group of conditions where the autonomic nervous system doesn’t work properly, affecting heart rate, blood pressure, and digestion.

Dysautonomia International
https://www.dysautonomiainternational.org
Standing Up to POTS
https://www.standinguptopots.org

Cancer (General)
A large group of diseases involving abnormal cell growth with the potential to invade or spread to other parts of the body.

American Cancer Society
https://www.cancer.org
National Cancer Institute
https://www.cancer.gov

Celiac Disease
An autoimmune condition where ingesting gluten damages the small intestine, causing digestive and systemic symptoms.

Celiac Disease Foundation
https://celiac.org
Gluten Intolerance Group
https://www.gluten.org

Chiari Malformation
A structural defect in the skull that pushes brain tissue into the spinal canal, often causing pain, balance issues, and fatigue.

Conquer Chiari
https://www.conquerchiari.org
ASAP – American Syringomyelia & Chiari Alliance Project
https://asap.org

Chronic Fatigue Syndrome / ME/CFS
A complex illness marked by profound fatigue, cognitive dysfunction, and post-exertional crashes that don’t improve with rest.

MEAction
https://www.meaction.net
Solve ME/CFS Initiative
https://solvecfs.org

Chronic Illness (General)
Ongoing physical or mental health conditions that last a year or more and require ongoing medical attention or limit daily living.

Chronic Illness Alliance
https://www.chronicillness.org.au
National Association of Chronic Disease Directors
https://www.chronicdisease.org

Diabetes
A chronic condition that affects how your body turns food into energy due to problems with insulin production or use.

American Diabetes Association
https://www.diabetes.org
JDRF (Juvenile Diabetes Research Foundation)
https://www.jdrf.org

Ehlers-Danlos Syndrome (EDS)
A group of connective tissue disorders characterized by hypermobile joints, fragile skin, and chronic pain.

The Ehlers-Danlos Society
https://www.ehlers-danlos.com

Epilepsy
A neurological disorder where brain activity becomes abnormal, causing seizures or periods of unusual behavior and sensations.

Epilepsy Foundation
https://www.epilepsy.com
CURE Epilepsy
https://www.cureepilepsy.org

Fibromyalgia
A chronic condition causing widespread pain, fatigue, and tenderness, often accompanied by sleep and cognitive issues.

National Fibromyalgia Association
https://www.fmaware.org

Graves’ Disease / Thyroid Disorders
An autoimmune condition that causes the thyroid to overproduce hormones, leading to anxiety, weight loss, and heart issues.

American Thyroid Association
https://www.thyroid.org
Graves’ Disease and Thyroid Foundation
https://www.gdatf.org

Guillain-Barré Syndrome
A rare disorder where the immune system attacks the nerves, often triggered by infection and leading to muscle weakness or paralysis.

GBS|CIDP Foundation International
https://www.gbs-cidp.org
NIH – Guillain-Barré Overview
https://www.ninds.nih.gov/health-information/disorders/guillain-barre-syndrome

Hidradenitis Suppurativa
A painful skin condition involving inflamed, boil-like lumps that may drain and scar, often in sweat gland areas.

HS Foundation
https://www.hs-foundation.org
Hope for HS
https://hopeforhs.org

Huntington’s Disease
A genetic disorder that causes the progressive breakdown of nerve cells in the brain, leading to movement and cognitive issues.

Huntington’s Disease Society of America
https://hdsa.org
Huntington Society of Canada
https://www.huntingtonsociety.ca

Lupus
An autoimmune disease where the immune system attacks healthy tissues, affecting joints, skin, and internal organs.

Lupus Foundation of America
https://www.lupus.org
Lupus Research Alliance
https://www.lupusresearch.org

Lyme Disease
A bacterial infection transmitted by ticks, causing fever, fatigue, joint pain, and neurological symptoms if untreated.

Global Lyme Alliance
https://www.globallymealliance.org
LymeDisease.org
https://www.lymedisease.org

MCAS (Mast Cell Activation Syndrome)
A condition where mast cells release too many chemicals, causing allergy-like symptoms, brain fog, and chronic inflammation.

The Mastocytosis Society
https://tmsforacure.org
Mast Cell Action
https://www.mastcellaction.org

Migraine
A neurological disease causing recurring, intense headaches, often with nausea, visual disturbances, or sensory sensitivity.

American Migraine Foundation
https://americanmigrainefoundation.org
Association of Migraine Disorders
https://migrainedisorders.org

Multiple Sclerosis (MS)
A disease where the immune system attacks the protective covering of nerves, disrupting communication between brain and body.

National MS Society
https://www.nationalmssociety.org
MS News Today
https://multiplesclerosisnewstoday.com

Myasthenia Gravis
A neuromuscular disorder causing weakness in the skeletal muscles due to communication breakdown between nerves and muscles.

Myasthenia Gravis Foundation of America
https://myasthenia.org
The Guthy-Jackson Charitable Foundation
https://guthyjacksonfoundation.org

Narcolepsy
A chronic neurological sleep disorder that disrupts the brain's ability to control wake and sleep cycles, causing sudden sleep attacks.

Narcolepsy Network
https://narcolepsynetwork.org
Wake Up Narcolepsy
https://www.wakeupnarcolepsy.org

Parkinson’s Disease
A progressive nervous system disorder that affects movement, often including tremors, stiffness, and balance issues.

Parkinson’s Foundation
https://www.parkinson.org
Michael J. Fox Foundation
https://www.michaeljfox.org

PCOS (Polycystic Ovary Syndrome)
A hormonal disorder causing irregular periods, ovarian cysts, and insulin resistance, often linked to metabolic and fertility issues.

PCOS Awareness Association
https://www.pcosaa.org
PCOS Challenge
https://www.pcoschallenge.org

POTS (Postural Orthostatic Tachycardia Syndrome)
A form of dysautonomia where standing causes an abnormal increase in heart rate, dizziness, and fatigue.

Standing Up to POTS
https://www.standinguptopots.org
Dysautonomia International
https://www.dysautonomiainternational.org

Pulmonary Hypertension
A rare type of high blood pressure that affects the arteries in the lungs and the right side of the heart.

Pulmonary Hypertension Association
https://phassociation.org
Team PHenomenal Hope
https://www.teamphenomenalhope.org

Rheumatoid Arthritis (RA)
An autoimmune condition where the immune system mistakenly attacks joints, causing pain, swelling, stiffness, and fatigue.

Arthritis Foundation
https://www.arthritis.org
RheumatoidArthritis.org
https://www.rheumatoidarthritis.org

Raynaud’s Disease
A condition where small arteries narrow, limiting blood flow to extremities (usually fingers and toes) and causing color changes, numbness, or pain.

Raynaud’s Association
https://www.raynauds.org
Scleroderma Foundation
https://www.scleroderma.org

Sarcoidosis
An inflammatory disease that causes clusters of inflamed tissue (granulomas), often affecting lungs, skin, or lymph nodes.

Foundation for Sarcoidosis Research
https://www.stopsarcoidosis.org
NIH – Sarcoidosis Overview
https://www.nhlbi.nih.gov/health-topics/sarcoidosis

Sjogren’s Syndrome
An autoimmune disorder that attacks moisture-producing glands, causing dry eyes, dry mouth, and fatigue.

Sjogren’s Foundation
https://www.sjogrens.org
NIAMS – Sjogren’s Syndrome
https://www.niams.nih.gov/health-topics/sjogrens-syndrome

Stiff Person Syndrome
A rare neurological disorder causing progressive muscle stiffness and painful spasms, often triggered by sound or emotional stress.

NORD – Stiff Person Syndrome
https://rarediseases.org/rare-diseases/stiff-person-syndrome

Tourette Syndrome
A neurological condition involving involuntary, repetitive movements and vocalizations called tics.

Tourette Association of America
https://tourette.org

Trigeminal Neuralgia
A chronic pain condition affecting the trigeminal nerve, often causing sudden, severe facial pain triggered by mild stimulation.

Facial Pain Association
https://facingfacialpain.org
TNNME – The World’s Voice for TN Awareness
https://www.tnnme.com